MS Diagnosis Journey

In the chronic disease arena, most everyone is more than willing to share their story for their own benefit and that of others. At the core of each story is the diagnosis. Everyone has a story to tell, and every storyteller needs an audience. We invite you to join us for the Multiple Sclerosis Diagnosis Journey podcast and listen to these unique stories. There's much to learn from each other by listening to these stories of diagnosis. By sharing their experiences with others, the MS Diagnosis journey podcast will serve as a vehicle for healing and empowerment for the storyteller. Support of this project is made possible through the generosity of Janssen Pharmaceutical Companies of Johnson & Johnson.

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MS Diagnosis Journey

Joan Jordan: "A Slow Volcanic Eruption"

September 22, 2022 • Laura Kolaczkowski • Episode 27

Like many of our guests, Joan Jordan's MS diagnosis took many years from her first reported symptoms. However, Joan's situation was complicated by the fact that she was working as a software engineer in various locations around the world - and was having to explain what was happening to her in a language other than her own.

In this interview, Joan talks about her MS's slow build-up, how her diagnosis eventually came through piecing together her entire medical history, and how she uses technology to record everyday symptoms between neurology appointments. She also talks about the support that is out there in the wider MS community, and how she creates artwork based on her MRI pictures.

Joan is a graduate of the EUPATI program, which trains patient advocate consultants.

Connect with Joan on LinkedIn
See examples of Joan's art at Optic Neuritis, Stained Glass and MS

Interview by Laura Kolaczkowski
Edited by Steve Woodward at The Podcasting Editor
Podcast artwork by Jackie Zimmerman at Queen of GSD
Background Music is “Old Photos” by Olexy

Support of this project is made possible through the generosity of Janssen Pharmaceutical Companies of Johnson & Johnson.